Nonprofits accept the e-health records challenge

Markle Foundation, others will fund exchange for sharing medical data

An example of a nationwide electronic health records exchange could be working before the year's end, the result of a public/private effort led by two prominent foundations. At a cost of $1.9 million, a model e-health records exchange will be set up among clinics in rural Mendocino County, Calif., and medical facilities in Boston and Indianapolis.

The Markle and Robert Wood Johnson foundations will help finance the exchange, Zoe Baird, president of Markle, announced last week at the FCW Events' Web-Enabled Government conference. Connecting for Health (CFH), a Markle-funded group with more than 100 participating organizations, has been working for more than a year on developing policies and technical specifications for electronically sharing medical information while protecting privacy, Baird said.

Markle's approach reflects the Bush administration's interest in promoting public/private partnerships to modernize the nation's health care infrastructure.

"We applaud the innovation and resolve that is shown by private-sector efforts to advance health IT," said David Brailer, leader of the Office of the National Coordinator for Health Information Technology at the Department of Health and Human Services. "These efforts are critical to making interoperability real and usable in everyday clinical settings."

In April 2004, President Bush called for nationwide e-health records within 10 years.

To the delight of privacy advocates, e-records in the proposed exchange will remain in local clinical databases and will not be kept in a central database.

Emily Stewart, a policy analyst at the Health Privacy Project, which participated in the CFH group, said she supports Markle's model for the proposed exchange because it relies on patient-informed consent and control. Patients and doctors can decide to keep records, choose what goes into records and who can access them, she said.

David Kibbe, director of the American Academy of Family Physicians' Center for Health IT, said the Markle project complements the academy's efforts. In cooperation with the American Medical Association and others, the academy has developed the Continuity of Care Record (CCR), a standard electronic snapshot of patient care that can be exchanged among disparate computer systems. The CCR is a 2K Extensible Markup Language file that can be displayed in PDF, Microsoft Word document or HTML format.

"It would seem that the CCR would be a perfect match for a system that is trying to exchange relevant information across the country," Kibbe said.

Baird said she hopes that the consensus among health care stakeholders that CFH has achieved will mitigate potential problems in building a nationwide capability for exchanging e-health records. Federal officials must learn from past information-sharing errors before taking on health data exchanges, she said.

Information sharing should be part of policy conversations at the beginning, Baird said. "It is critical, as we approach information sharing in health care, that we not make the same mistakes the government made with national security projects."

Two nations get serious about e-health records

Australia and Canada launched major electronic health records projects last week that use information technology to support health care.

Australia released its national e-health care strategy and began the first phase of its e-health record network deployment in Tasmania and the Northern Territory.

HealthConnect, an e-health records project led by Australia's Health and Ageing Department, requires the use of standardized electronic clinical messages to support enhanced communications among health care providers.

In Canada, officials launched a project to show how independent health information systems can use open-source standards to exchange data. Canada Health Infoway, a nonprofit corporation, is leading the country's e-health programs by making the organization's suite of e-health reference standards available for free on the Internet.

— Bob Brewin

The Fed 100

Save the date for 28th annual Federal 100 Awards Gala.


  • Social network, census

    5 predictions for federal IT in 2017

    As the Trump team takes control, here's what the tech community can expect.

  • Rep. Gerald Connolly

    Connolly warns on workforce changes

    The ranking member of the House Oversight Committee's Government Operations panel warns that Congress will look to legislate changes to the federal workforce.

  • President Donald J. Trump delivers his inaugural address

    How will Trump lead on tech?

    The businessman turned reality star turned U.S. president clearly has mastered Twitter, but what will his administration mean for broader technology issues?

  • moving ahead

    The bid to establish a single login for accessing government services is moving again on the last full day of the Obama presidency.

  • Shutterstock image (by Jirsak): customer care, relationship management, and leadership concept.

    Obama wraps up security clearance reforms

    In a last-minute executive order, President Obama institutes structural reforms to the security clearance process designed to create a more unified system across government agencies.

  • Shutterstock image: breached lock.

    What cyber can learn from counterterrorism

    The U.S. has to look at its experience in developing post-9/11 counterterrorism policies to inform efforts to formalize cybersecurity policies, says a senior official.

Reader comments

Please post your comments here. Comments are moderated, so they may not appear immediately after submitting. We will not post comments that we consider abusive or off-topic.

Please type the letters/numbers you see above

More from 1105 Public Sector Media Group