NIH, CDC sign global pact on data sharing

17 agencies and groups agree to overcome barriers to sharing public health data

Five federal health research agencies are among the 17 government and private groups that have agreed to share research findings on public health in a more timely and effective manner.

The Agency for Healthcare Research and Quality, the Centers for Disease Control and Prevention, the Health Resources and Services Administration, the National Institutes of Health, and the Substance Abuse and Mental Health Services Administration are among the organizations that signed the agreement.

The goal is to share population data in ways that are equitable, ethical and efficient, said Mark Walport, director of Wellcome Trust, and Paul Brest, president of the Hewlett Foundation, in announcing the agreement Jan. 10.


Related stories:

CDC expands flu-tracking efforts

Committee studies public health, research


In recent years, agencies and organizations that fund public health research around the world have recognized barriers to sharing information, including concerns about balancing the needs of researchers, analysts, communities and funders and protecting the privacy of people and communities.

The funding agencies have held several meetings to agree on core principles for sharing data.

A number of problems remain, including the need to build an infrastructure and culture to support data sharing, providing incentives for data sharing and providing tools to analyze, store, secure and preserve the data, Walport and Brest said in the release.

"The commitment of so many leading funding agencies sends a strong signal that we are committed to maximizing the full potential of public health research data to generate better health," Brest said.

Other signatories to the agreement include the Bill and Melinda Gates Foundation, the Doris Duke Charitable Foundation, the World Bank and agencies in Australia, Canada, France, Germany, New Zealand and the United Kingdom.

About the Author

Alice Lipowicz is a staff writer covering government 2.0, homeland security and other IT policies for Federal Computer Week.

Featured

  • Contracting
    8 prototypes of the border walls as tweeted by CBP San Diego

    DHS contractors face protests – on the streets

    Tech companies are facing protests internally from workers and externally from activists about doing for government amid controversial policies like "zero tolerance" for illegal immigration.

  • Workforce
    By Mark Van Scyoc Royalty-free stock photo ID: 285175268

    At OPM, Weichert pushes direct hire, pay agent changes

    Margaret Weichert, now acting director of the Office of Personnel Management, is clearing agencies to make direct hires in IT, cyber and other tech fields and is changing pay for specialized occupations.

  • Cloud
    Shutterstock ID ID: 222190471 By wk1003mike

    IBM protests JEDI cloud deal

    As the deadline to submit bids on the Pentagon's $10 billion, 10-year warfighter cloud deal draws near, IBM announced a legal protest.

Stay Connected

FCW Update

Sign up for our newsletter.

I agree to this site's Privacy Policy.