Health IT

By Alice Lipowicz

Blog archive

The emergence of the e-patient

 The National Library of Medicine wants to be part of the conversation on “e-patients.” So it made sense to Dr. Donald Lindberg, director of the library, to co-sponsor an e-patient conference on April 6 and April 7 on the National Institutes of Health campus in Bethesda. The event brought in experts and patients who are using social media tools and other health IT applications to help manage their care.

“I was struck by the patients going after the information on the Internet. They deem themselves e-patients,” Lindberg told me. “Call if chat groups or whatever, the patients get helpful information from each other.”

The focus of the e-patient conference was on personal health records and personalized health care, Lundberg said. The national library can help with developing technical and vocabulary standards in those areas, he said.

What else should government do? I asked him.

“It should stand back,” Lindberg said.

I could not help noticing that relatively few vendors appeared to attend the event, in contrast to other recent well-attended health IT conferences. I asked Dr. Andrew Balas, board member of the Friends of the National Library of Medicine, also a co-sponsor of the event, whether vendors were more interested in electronic health records (EHRs), rather than personal health records (PHRs).

EHRs are used by doctors’ offices and institutions, while PHRs are used by patients to access their own records. The bulk of the $20 billion in economic stimulus law funding goes for EHRs.

Balas said personalized health care covers more than just PHRs. It is a set of technologies, including genomics, that allows for personalized care. And there also is some convergence with PHRs and EHRs, he added.

“You can talk about PHRs, or EHRs, or about patient access to EHRs,” Balas said.

Posted by Alice Lipowicz on Apr 08, 2010 at 12:14 PM


Featured

  • Contracting
    8 prototypes of the border walls as tweeted by CBP San Diego

    DHS contractors face protests – on the streets

    Tech companies are facing protests internally from workers and externally from activists about doing for government amid controversial policies like "zero tolerance" for illegal immigration.

  • Workforce
    By Mark Van Scyoc Royalty-free stock photo ID: 285175268

    At OPM, Weichert pushes direct hire, pay agent changes

    Margaret Weichert, now acting director of the Office of Personnel Management, is clearing agencies to make direct hires in IT, cyber and other tech fields and is changing pay for specialized occupations.

  • Cloud
    Shutterstock ID ID: 222190471 By wk1003mike

    IBM protests JEDI cloud deal

    As the deadline to submit bids on the Pentagon's $10 billion, 10-year warfighter cloud deal draws near, IBM announced a legal protest.

Stay Connected

FCW Update

Sign up for our newsletter.

I agree to this site's Privacy Policy.